Survey on patient needs online!
The anonymous survey to answer questions about the needs of patients is now online.
Within CHARLIE researchers in six countries work every day to learn more about the diseases PDE and GA1. The ultimate goal is to be able to offer patients more and better treatment options. Patient involvement is an important aspect of the CHARLIE-project.
Therefore, an online- survey about the needs and opinions of patients and caretakers is waiting to be completed. We hope that many patients and caretakers will participate in the survey. The survey is totally anonymous.
The survey is available in four languages: English, German, Spanish and Dutch. We hope that scientists, patients and caretakers will spread the word, so that many patients are able to contribute their opinions. Please click the link below to go to the survey directly.
